Keeping on

I am alternating between intense bouts of planning and exhaustion. When I have energy, I focus on what I can do and how I can prepare for the time I will be out of action.  When I do not, I sleep.

Yesterday we worked on converting our dining room into a play room for Alannah.  There’s a bit to go, but it is taking shape and she loves it. We had lunch out with friends.  Darren is organising a few “last suppers” for us before the liquid diet is imposed.

Today I fell asleep at lunch while Alannah’s Nanny (Darren’s mum) had made the long journey up to visit.  I no longer even hear Alannah wake in the morning and she and Darren always have breakfast and a play together before I wake.  (When Alannah woke briefly last night for the first time in ages, Darren attests I flew out of bed.  It is reassuring that I react when I’m needed.)

It can be a fine balance between the right level of pain relief and functioning.  I seem to have no appetite, but I eat well at each meal time.  As I said, the things I can control.

On the day they first identified my tumour, I had my first CT scan.  Tomorrow I will have my second, along with an MRI.  Dr Post-haste, my new oral and maxillofacial surgeon and leader of the team that will slice and dice Blaster and me, wants more detailed information to prepare for surgery.

While the first CT scan was diagnostic only, it does give a pretty good idea of the damage Blaster had done when we first met on 9 May, just over a month ago now.

The first image is a horizontal cross-section of my head, as if you’d beheaded me a little high at my lower jaw level.  Up the top, you can see my teeth and, down the bottom, my spine.  On the left, my perfectly healthy right lower jaw bone.  On the right, you can see how the tumour has eaten away and stretched my left lower jaw bone.  This is where my jaw is paper thin.
CT scan 1 for blog.jpg

This next scan is a vertical cross-section of my head.  Up the top are my sinuses.  They are hard to make out I know as they are just black voids.  Down the bottom are my jaw bones.  Again on the left is my perfectly healthy right lower jaw bone.  On the right, you can see that there is little of my left lower jaw bone left.  The black is the tumour.

CT scan - vertical slice - 9 May 2011



  1. I suspect you will be weary after your busy dqy of appointments all over the city coming up. The eating is important, hungry or otherwise. Good ole Spinna …

  2. Marieke says:

    Crikey. Although completely different situation, I so understand the rollercoaster of feelings. Your new surgeon sounds very much like a typical surgeon to me whereas the other one sounded more like ‘a doctor’ if that difference makes sense. You might benefit from recording your conversations with him, to ensure you can take in all the info at your leisure at home?

  3. It’s like you’re planning a very unpleasant holiday! I’m glad you’re getting the extra sleep you need. Sleep is gold. And so is your hubby by the sounds of it. Good work, team.

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